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DMD Stories
Each person living with DMD has
a unique and powerful story to tell
We support all people, families and caregivers living with rare diseases, this Rare Disease Day and every day

Living with DMD has profound impacts on every part of people’s lives, from work and socializing to family life. Community members have shared moving examples of living with Duchenne with our team and have told us what it would mean to them to have a transformative therapy for their disease.

Catherine and Alan

Meet Catherine and Alan

Catherine and Alan share their journey living with DMD and their hopes for the future

Diana and Jordan photo

Meet Diana and Jordan

Diana shares her family’s journey with Duchenne

Ravi L. photo

Meet Ravi

“I want to be someone:”
Ravi’s journey with DMD

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